Thursday, April 11, 2013

Wilbargers Brushing Protocol and Joint Compressions Day 1

This morning I started using the Wilbargers Brushing Protocol with SuperE. I did it with only reading the paper and my Dad giving me instructions. I didn't do it right! This morning was one of the roughest we've had this year. It was raining this morning, the bus was late, and SuperE couldn't understand why I would not let him take his MobiGo to school.

For starters, the rain brings out the meltdown every time it rains in the morning! He was wearing a raincoat and was still cringing every time a drop of rain came down...it was a downpour. I don't know if it is the sound of the rain or simply it is just because it is water. SuperE also hates bath time...often obsessing about water being poured over his head or even laying down in the tub because he might drown.

It is recommended that you do the brushing and joint compressions every 2 hours. That is just not going to happen. The therapist did tell us to try 3 times a day. I am hoping the new sitter is willing to try the technique eventually. So, here we go only doing it 2 times a day.

I feel prepared and ready to try this tonight! I have watched a few YouTube videos, more advice from OT, and also instruction from the PT at school. Here goes nothing...I will let you all know how it goes but in the meantime, for more information, check out the following website that explains this therapy:

http://www.nationalautismresources.com/wilbarger-protocol.html

Thursday, April 4, 2013

Kindergarten Fears

My baby boy is finally going to Kindergarten on time, just as he should, this next school year! I am so torn in all of this because I fear that he is not ready. Academically, he is ready. Socially, not so much. I trust his teachers and their opinions and expertise on this matter. However, I have this niggling little feeling of disaster.

 I fear that I am going to receive phone call after phone call every day saying, "Mrs. My Quirky Son, this is the school principal. SuperE has disappeared from the building." or "Mrs. My Quirky Son, this is the school principal. SuperE has been kicking, hitting, and biting the teacher." or "Mrs. My Quirky Son, this is the school principal. SuperE does not qualify for extra help because the State of Ohio has cut funding."  These are things I actually dream about happening and even scarier, funding being cut is happening. What is the future for my quirky son?

I am worried that he will go to school and the other kids in his class won't understand his quirks and that they will end up picking on him. Nothing tears this Mama Bear's heart more than when one of her kids or any kid are getting bullied or picked on.

I worry that he isn't going to be able to concentrate enough to learn. That when they test him, he won't do so well. I have so many questions about this. Are they going to have a helper in his classroom? Honestly, I don't think that he is going to be able to sit down long enough without pacing, circling, or hiding under tables without an adult to sit by him constantly. He is barely able to do this now. I think it goes okay because there are many helpers in his classroom. I don't remember there being any extra, trained helpers when KK was in that grade.

I am a full time working Mom. How am I going to balance working full time, making sure he gets what he needs, making sure my daughter gets what she needs, and keeping my home in order? There are just not enough hours in the day to get it all done. Not to mention I am a wife too...how am I going to keep my marriage together? I am feeling like my life is spinning out of control. I pray and I write and I do calm breathing exercises...I am about to break. Maybe my fear isn't related to SuperE going to Kindergarten, after all. Perhaps this fear inside of me is simply of failure.